Nesma Aly

A fantastic camp experience for kids with unique health conditions

Aug 18, 2017

Believe it or not, camp was a favorite part of summer for Nesma Aly from 2008 to 2016. When Nesma was nine months old she was diagnosed with osteopetrosis, a rare congenital disorder in which bones become prone to break easily due to an imbalance in bone formation and breakdown. Camp Fantastic is distinctive in that it provides a normal camping experience for a unique group: children between the ages of 7 and 19 who are undergoing cancer treatment presently or in the last three years, or a bone marrow transplant in the last five years. The 2017 Camp Fantastic session runs August 13-19.  Read more...

Center for Cancer Research hosts 10th Annual GIST Clinic

Jul 14, 2017

Patients and specialists from around the world gathered for the 10th Annual Pediatric and Wildtype GIST Clinic, which took place Wednesday, July 5 through Friday, July 7, 2017 at the NIH Clinical Center in Bethesda, Maryland. Occurring once a year, the clinic convenes clinicians, research scientists and advocates from across the country to consult with patients who have GIST. Christine Gonzales, a GIST clinic patient from New Mexico, says, “It’s been super amazing because I’ve never talked to a specialist about this cancer."

Dr. Hinrich and Ms. Wallace

Using the immune system to fight, and win, the battle against cervical cancer

Jun 6, 2017

Aricca Wallace and Christian Hinrichs, M.D., catch up like old friends each time she comes to the National Institutes of Health Clinical Center for follow-up appointments. She updates him on her two boys’ wrestling competitions and state titles. He shows her pictures of the new puppy that is terrorizing his house. So far, they’ve finished each visit with Dr. Hinrichs telling her she is still cancer-free, something she never thought she would hear following her diagnosis with metastatic cervical cancer.  Read more...

Not slowing down

May 19, 2017

Nine and-a-half-year-old Travis Carpenter gets a lot of speeding tickets. (He stresses that “and-a-half” part, too). These speeding tickets don’t come from a law enforcement officer but Jesse, one of his nurses at the NIH Clinical Center. Travis uses a power chair that he’s adorned with racing stickers, and his speeding tickets come from him zooming down the Clinical Center’s hallways, dodging the steady traffic of doctors, nurses, patients and families. He loves all things racing, NASCAR and pit crews. Neurofibromatosis type 1 isn’t slowing him down. Read more...

Kristy and her daugher Jane

A Conversation with Kristy and Jane

May 17, 2017

Jane has been coming to the NIH Clinical Center for treatment for neurofibromatosis type 1 (NF1) since she was three years old. She is currently enrolled in a trial that tests Selumetinib, a MEK inhibitor, and her tumor is now 30.7 percent smaller than when she first started this trial three years ago. Her diagnosis has changed the lives of her family but has also given them new passions and perseverance. Read more...

Joel Rodriguez enjoys a French fry.

“They gave me my life back”

Mar 30, 2017

Collaboration between the CCR and NIAID helped a teenager eat a cheeseburger again. Learn more...

The NIH Clinical Center

A teen’s participation in clinical trials inspires a career in science

Mar 13, 2017

Nathan Porter, a 16-year-old student with a rare disease called multiple endocrine neoplasia, discussed his experience with the condition with The Daily Times of Blount County, Tennesse, for February’s Rare Disease Day. When first diagnosed with the disease at age 10, he says he thought “Why me?” However, in eighth grade, when the condition led him to participate in clinical trials at the NIH Clinical Research Center, he discovered his passion for science and has since applied for a summer internship at NIH. “Dealing with nurses and doctors of this degree really led me to my passion in the sciences and psychology and genetics, which is what I want to go into with my life,” he says. “My main passion is genetics, and what I would like to do is look at genetic cancers, go in there and see what exactly causes them to be passed down and look at how they get turned on.”  Learn more...