Clinical Information


On June 18th and 19th, 2008 the National Institutes of Health (NIH) hosted the first clinic focusing on pediatric gastrointestinal stromal tumor (GIST). In attendance were clinicians and basic science researchers from across the nation, members of GIST Support International and LifeRaft Group, and 14 patients and their families. Since then, we have held 12 clinics and seen more than 100 patients. The NIH would like to thank everyone who volunteered their time and energy to help in this endeavor of finding ways to understand and treat pediatric GIST.

Our commitment is to continue to hold yearly clinics for pediatric and wild-type GIST patients. We will also continue to communicate with patients, families and the physicians of those who attended previous clinics. Follow-up visits at subsequent clinics are also encouraged. This will allow us to monitor how everyone is doing over a long period of time. We also hope to develop new therapeutic trials for patients with SDG-deficient GIST and also for patients with NF-1-associated GIST.

People sitting around a conference table

The other pages within this section, accessible from the navigation to the right, contain background articles concentrating on pediatric or wildtype GIST, the rationale for this initiative, and some of the results we have obtained from our patients.