Resources
COVID-19 advice letter for children in XP TTD CS study
COVID-19 advice letter for special needs children in XP TTD CS study
Information on COVID-19 and Living with the Social Consequences of the Infection
Coronavirus FAQ from the CDC - information from the Centers of Disease Control and Prevention.
Dealing with Stress, Anxiety, and Grief During COVID-19 - a wonderful conversation between NIH Director, Dr. Francis Collins, and Dr. Joshua Gordon, Director of the National Institute of Mental Health (NIMH) on dealing with stress, grief and anxiety during COVID-19.
Supporting Mental Health During the COVID-19 Pandemic - link to the NIMH website section addressing some of the emotional issues occurring while living with the COVID-19 pandemic. There are links to other sites for additional information on dealing with stress.
Services for Children with Disabilities
Are Special Education Services Required in the Time of COVID-19? - Link to the American Bar Association statement on special education services and COVID-19. Contains suggestions for parents of special needs children who are experiencing disruption of services.
Responsibilities of local educational districts to children with special needs - This is a statement from the Federal Department of Education describing the responsibilities of local educational districts to children with special needs.
Center for Parent Information & Resources - Online center for parents who have children with disabilities. Provides information on COVID-19 and special education needs. We understand that social isolation, reduction in physical activity, unpredictability and changes in routine can all contribute to increasing stress. People living with DNA repair conditions often have some aspects of physical distancing. However, missing out on school activities, therapies or being required to attend school classes and work from home can feel isolating.