Support Services and Referrals

Support Services

Image

As part of our comprehensive care we provide natural history protocols pertaining to rare inherited and sporadic urologic malignant disorders. We treat these disorders with targeted molecular drug therapies and innovative surgical procedures. Our patients are provided guidance and assistance with appointments, travel, counseling and social support throughout the process and follow up. We also believe strongly in collaborating with your primary care physican (with your permission) to form your "expert care team." Before your first visit, we may ask you to provide medical records, CDs with MRIs, CTs, or PET scans, and a list of medications.

  • Consultations are at no cost to the patient.
  • After a patient is accepted on a study, treatments, tests and other services at the NIH Clinical Center are also no cost.
  • NIH does not cover expenses for medical services at other facilities.
  • We are located on the NIH campus in Bethesda, Maryland, approximately 8 miles north of Washington, D.C.
  • The Urologic Oncology Branch Clinic is on the 3rd floor of the Magnuson Clinical Center (Building 10).
  • Visitor information is available at NIH Clinical Center - Access and Directions (View Map).

Genetics Counseling

We help patients with rare cancer susceptibility conditions understand the clinical and genetic basis of their condition and the importance of the surveillance plan that will be necessary throughout their life span.  We meet with our patients to determine the appropriate genetic analysis to perform based on their personal and family medical history, renal tumor pathology, physical and dermatologic examinations and the results of other clinical evaluations. 

Image

Referrals

Image

Main Administrative Office:  240-858-3700

  • Available Monday - Friday, 8:30 AM - 5:00 PM
  • Patient Records:  301-496-5981
Our Administrative Staff:

Crystal Fuller
Program Specialist
240-858-3898

Margot Michels
Administrative Assistant (Contr.)
240-858-3966

Rose Jochum
Administrative Assistant (Contr.)
240-858-3971

Referrals and Information about Clinical Trials
  • Kidney
    • Information about Trials:  240-760-6247 | 240-760-6243
    • Current Patients:  240-858-3907 | 240-858-3913
  • Prostate
    • Main Line: 240-858-7200
  • Bladder
    • Information about Trials:  240-858-3409  |  240-760-6118
    • Current Patients:  240-858-3412

Our oncology nurses and practitioners understand both the genetic basis of prostate and urologic cancers and the rationale behind emerging clinical trials.  Their knowledge of the basic principles of genetics, tumorigenesis, diagnostics, treatment and surveillance modalities is incorporated into our protocols and practice. When surgery is indicated, the Urologic Oncology Branch offers state-of-the-art procedures.  Clinical trial coordinators guide patients and their families through our targeted therapies, and provide assurance by carefully explaining the treatment plan. In addition, genetic counselors provide further information for a wider perspective of various conditions.