Pediatric Oncology Branch: Psychosocial Support & Research Program
The Pediatric Oncology Branch has produced a number of educational and therapeutic materials to help the children we serve learn about their condition and cope with the challenges they might face as a result of their illness. If you are interested in any of these resources, contact Lori Wiener, Ph.D., at firstname.lastname@example.org.
Voicing My CHOiCES
Voicing My CHOiCES is the first advance care planning guide for adolescents and young adults based on research conducted at the NIH.
This Is My World
This workbook was designed as a psychotherapeutic tool for therapists to use when working with children and adolescents who have been diagnosed with a chronic or potentially life threatening illness. The pages within the workbook contain writing, drawing, crossword puzzles, and other fun activities that address items such as family, friends, favorite activities, coping, and loss. Children and their families enjoy going back years later to read what they had written about their journey of living with their illness. View/download PDF.
ShopTalk is a therapeutic game designed for children living with cancer or another serious illness. It was created by Drs. Cindy Mamalian (an artist and psychologist) and Lori Wiener to help therapists lead conversations with pediatric patients about difficult emotional issues related to the illness that has affected their lives (ages 7 to 16 years). ShopTalk players visit 10 different “shops” around the board, choosing one of 6 “gifts” from each store to place in their individual shopping bag when they choose to answer the question. The shops are named according to different themes: The Ball’s in Your Court sports store, for example, allows players to explore how they would respond to various social scenarios during treatment.
ShopTalk is available in three versions, one for pediatric cancer patients, one for their siblings, and one for children whose parent have cancer. All questions in both versions of the game are written in Spanish as well as in English. Therapists who are interested in obtaining a copy of the game should contact Dr. Wiener directly at email@example.com.
Medicine and Your Child
A Guide for Parents on Adherence and Administration. View/download PDF.
Katie Finds Her Courage
This book was written for families who have a child with neurofibromatosis type 1 (NF1). It tells the story of a child who is learning about having NF1 in words that children can understand and then finds the courage to share the information with her class. The book has activities for the child to engage in, a glossary of terms, and tips for teachers. View/download PDF.
Brothers & Sisters Together
This is a therapeutic workbook designed for the brothers and sisters of pediatric patients being treated for a serious illness. Each page covers a different topic, and many pages contain quotes and sayings written by other brothers and sisters, interactive activities and tips for reaching out for help or books to read. View/download PDF.
Hermanos y Hermanas Juntos
Un cuaderno de ejercicios para hermanos de chicos enfermos. View/download PDF.
Being a Stem Cell Donor
This booklet was designed to help prepare sibling donors for the stem cell donation. It explains the transplant procedure, donation/collection process and allows them to express their concerns and questions through a daily diary. The booklet also contains a word search game, glossary of terms, and a listing of national resources. View/Download PDF.
Parents never want to think that the day will come when their child will no longer be with them. Yet, when a child is very ill, parents often think about what they will do or what they should be considering as their child becomes more ill. This booklet was written as a guide to help parents as they begin to make plans and informed decisions when end-of-life may be near or at the time of their child’s death. View/download PDF.
Cuando ya no hay posibilidad de cura para su niño: Un guía para padres y cuidadores
Los padres nunca quieren pensar que llegará el día cuando su niño ya no estará con ellos. Sin embargo, cuando un niño está muy enfermo, muchas veces los padres piensan qué harán o qué deberían estar considerando a medida que su niño se enferma más y más. Este manual está diseñado como guía para ayudarle a medida que empieza a pensar acerca de qué podría pasar a continuación. Brinda información que puede ayudar a orientarle a medida que empieza a realizar planes y decisiones informadas acerca de cuándo podría estar el final de la vida o al momento de la muerte de su niño. View/download PDF.
Children with Cancer: A Guide for Parents
This guide is for parents who have a child with cancer. It has information about childhood cancer, together with tips to help you and your family to cope during this challenging time. Visit Children with Cancer: A Guide for Parents.
The Gift of Gerbert's Feathers
For children living with a serious illness or for those worried about someone with a serious illness, storybooks can be a starting point for discussion, a safe way to ask questions, express concerns or worries about the character, or talk about their own feelings or experiences. The Gift of Gerbert's Feathers is a picture book that provides families with an opportunity to explore how a child and his family navigate feelings around serious illness and death.
Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management
This is the first pocket-size handbook covering basic principles of pediatric psychosocial oncology. Fifty-four contributing authors representing 29 institutions contributed chapters to this publication, which offers access to expert advice on the psychiatric, psychological, social and spiritual issues related to pediatric cancer treatment and survivorship. For more information on this book and others, visit Oxford University Press.
Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care
This textbook walks clinicians through the psychosocial issues and challenges faced by children and adolescents with cancer and their families. Through a developmental lens, the text provides guidance and resources that will enable clinicians to understand the physical and emotional impact of the disease from diagnosis onwards, to work with families in distress, and to diagnose and treat a range of behavioral, psychological, and psychiatric issues.
Standards for Psychosocial Care for Children With Cancer and Their Families
This special issue of Pediatric Blood & Cancer provides standards for psychosocial care for children with cancer and their families.