Take a tour of the NIH Clinical Center with Travis, one of our NF patients, and learn more about patient advocacy organizations and resources for NF families.
- Travis Carpenter's Clinical Center Video Tour
- Children's Tumor Foundation
- NF1 Factsheet
- NF2 Factsheet
- NF Consortium
- Outside Physicians/Finding NF care
- Top Ten Advancements in NF Research 2022
- Koselugo (selumetinib) approved in US for pediatric patients with neurofibromatosis type 1 plexiform neurofibromas
- Selumetinib (Koselugo)- Product information FDA
- Selumetinib: The First Effective Treatment for Plexiform Neurofibromas
- REiNs