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Use this page to help guide the questions you ask your genetic counselor before you undergo any genetic tests. Bring a pen, and possibly a notebook, to your appointment. You can print and fill in answers to each question below and should feel free to add any other questions that you may want answered.
- What type of genetic test would you recommend?
- What does the genetic testing process involve?
- How likely is it that I have a CDH1 or other cancer-related gene variant?
- If I test positive for a CDH1 variant, what cancers am I at risk of developing?
- What can I do to reduce my chance of developing cancer?
- Does the test provide information about my risk for other diseases besides cancer?
- If I haven’t been diagnosed with cancer and I test positive for an inherited cancer gene variant, does that mean I am going to be diagnosed with cancer?
- If I haven’t been diagnosed with cancer and I test negative for a cancer gene variant, does that mean my cancer risk is not higher than average?
- Is it possible for my results to be uncertain?
- If I’ve already been diagnosed with cancer, can genetic testing help predict whether the cancer will come back?
- If I get genetic testing now, do I need to get tested again in the future?
- How will the results of my genetic test impact my family members?
- What are my options to pay for genetic testing?
- Can my health or life insurance company increase my rates if I test positive?
- Should I obtain life insurance before undergoing genetic testing?