Patient Services
We are committed to improving outcomes for children, adolescents and young adults with genetic diseases of the blood and immune system.
Patients are provided guidance and assistance with appointments, travel, counseling and social support. We believe it is important to collaborate with our patients' primary care physicians in order to provide expert continuity of care. Before visiting, patients may be asked to provide medical records, disks with scans or x-ray studies and a list of medications. Important facts for our patients:
- Consultations are provided at no cost to the patient
- After a patient is accepted onto a study, treatments and tests performed at NIH are also at no cost to the patient
- NIH does not cover the cost of medical services provided at other facilities
- We are located in Bethesda, Maryland, approximately 8 miles northwest of Washington, D.C.
- Our clinics are located in the NIH Clinical Center (Building 10)
- Visitor information is available at NIH Clinical Center
Questions? Visit NIH Clinical Research Trials and You.
Educational Resources for Patients
Visit the NIH Genetic and Rare Diseases Information Center to learn more about:
Patient Referrals
Patients, family members and physicians may contact our referral nurse from 8:30 AM to 5:00 PM, Monday-Friday:
Lisa Duncan, BSN, RN
Referral Nurse
Immune Deficiency - Cellular Therapy Program
Clinical Research Center / National Cancer Institute
Ph: 240.858.7019
lisa.duncan@nih.gov
Our care team contacts any prospective patients within 24 business hours after your call to collect basic information and give further instructions. We require a medical summary, operative notes, relevant radiographic scans (MRI, CT, PET), pathology report, and additional materials as indicated.
With the patient’s permission, we keep their primary physician fully informed and involved in their care. After consultation, the physician (or nurse practitioner) will contact the patient's primary physician to coordinate care and follow-up plans.