- Akron Children's Hospital Launches App for Childhood Cancer Survivors
- Cultural Approaches to Pediatric Palliative Care
This guide to cultural information for patient care below is designed as a resource for improving interpersonal relations, increasing understanding, and furthering world class service for the UMass Medical Center diverse patient population. By heightening awareness, enhancing communication and developing better cultural competence we keep patients first.
- Cure 4 Kids
St. Jude Cure4Kids is a Web site dedicated to improving health care for children with cancer and other catastrophic diseases in countries around the globe. Cure 4 Kids provides continuing medical education focusing on cancer, pediatrics, oncology, and global communication tools to health care professionals and scientists worldwide. Explore this free resource and start collaborating worldwide!
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Division 54 - The Society of Pediatric Psychology Committee on Science and Practice
The Society has been working with the membership to develop an Evidence-Based Practice (EBP) resource library to host on the Division 54 website at:
- Evidence-Based Practice Resources
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The first part of the library is now complete, which includes about 30 fact sheets to provide accessible information on the prevalence, etiology, consequences, and evidence-based psychological assessment and treatment of common pediatric conditions. From the main EBP Resource page, you can click on "fact sheets.
These fact sheets are the result of the outstanding collective effort of over 75 SPP members who made contributions to writing or reviewing fact sheets (see complete list of contributors on the web page). I want to extend a special thank you to all of these members!
The second part of the library includes evidence-based assessment resource sheets that will provide summaries of standardized measures in different outcome domains.
We are planning to develop additional EBP resources on evidence-based interventions. Please feel free to share your comments and ideas about the new EBP resource library with me at: tonya.palermo@seattlechildrens.org
- Health Care Toolbox
A health care provider's guide to helping children and families cope with illness and injury. Includes patient handouts which may be downloaded, information on assessment tools and quick interventions, and information on understanding patient perceptions.
- Levine Children's Hospital Bereavement Support Group Manual:
One of the 15 critical psychosocial standards of care is specific to bereavement and emphasizes the importance of continued psychosocial support for families after the death of their child from cancer. The goal of the group is to provide ongoing bereavement support that helps to mitigate the psychosocial effects of losing a child to cancer, as research suggests that caregivers who have lost a child to cancer are at risk for poor mental and physical health outcomes. With the generous support of the Mattie Miracle Cancer Foundation, we were able to gather information from some of the pre-existing and new members of our group to identify clinical characteristics and improve services provided. In addition, one of the main aims of this grant was to create a manual to assist with dissemination of this novel group. The manual include information about how to create a group on Facebook, what types of information to discuss with legal/ethics at the institution, and how to structure and initiate the online group. The manual is now available for dissemination to any institutions interested in learning more about how to implement an online bereavement support group. For more information, including a copy of the manual, please contact Gillian Regan, PhD at gillian.regan@atriumhealth.org.
- Professional Journal Writing
- The Single Fathers Due to Cancer
The Single Fathers Due to Cancer program is dedicated to helping the thousands of fathers who each year lose their spouses to cancer and must adjust to being sole parents. Remarkably, few resources are available for fathers and very little is known about the unique challenges they face and how to best help them through this enormously difficult time. This website offers support, information, and resources to fathers as they adjust to being sole parents and work through their grief and that of their children. The site also provides information for health care professionals in oncology and clinical settings.The program was featured in the NY Times (link is external)
DISCLAIMER - While we tried to include potentially useful resources, this website is not exhaustive. New and additional resources may be available. Please let us know if there is a resource you would like to be included.