Transplant Info
This site provides information and support for bone marrow donors and patients.
This site “helps patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.”
Legal and Other Financial Assistance
FMLA mandates that covered employers must grant eligible employees up to a total of 12 workweeks of unpaid leave during any 12-month period to care for an immediate family member (spouse, child or parent) with a serious health condition.
Phone: 1-800-772-1213
SSI is a federally funded (USA) program that provides monthly payments to disabled children (as well as to disabled adults and to the elderly) if medical and financial eligibility criteria are met. If a child is eligible, he/she automatically qualifies for Medical Assistance (MA) to help pay for medical expenses. You can apply at your local Social Security Administration office, by phone, or online.
CureSearch for Children's Cancer: Children's Oncology Group (COG)
- CureSearch for Children's Cancer and the Children's Oncology Group are proud to announce that the Children's Oncology Group's Family Handbook for Children with Cancer, Second Edition, is now available.
The psychosocial section on the COG website (“Coping with Cancer”) provides basic information, assessment tools, simple interventions, and guidance for when and how to seek professional support for emotional, educational, and other psychosocial challenges faced at the time of diagnosis, during and after cancer treatment, and during lifelong follow-up. While the primary audience for this website information is the families of patients, information has also been specially created for community members who frequently interact with cancer patients and their families, such as school professionals, religious leaders, or neighbors. In addition, this website is intended to be a resource for professionals of all disciplines engaged in the diagnosis and management of cancer in children, adolescents, and young adults. This portion of the COG website is the result of efforts of the COG Behavioral Science (BSC), Patient Advisory (PAC), and Nursing Committees who have designed a website section that is easily navigable and will be continuously updated.
Our goal was to produce an evidence-based, online resource of plain language, behavioral/psychosocial information and tools to assist families affected by childhood cancer and their wider community. Utilizing the COG website, staff from the National Childhood Cancer Foundation and experts in childhood cancer from the COG's BSC, PAC, and Nursing committees, we have developed a user -friendly section of the COG website that contains easily navigable information, assessment tools, and descriptions of evidence-based interventions designed to help patients, families, and communities more effectively manage the psychosocial care of children with cancer over the course of the cancer treatment trajectory.
Expected outcome and impact: The availability of evidence-based psychosocial guidance and tools on the COG website will increase awareness of physical, emotional, educational, and psychosocial issues related to cancer and its treatment. The result of this project is that all pediatric cancer patients, their families, and their wider communities will have easily accessible, simple tools to help improve the quality of their life during and after treatment. We hope that the website will provide parents and staff with information about why, when, and how to seek professional help when necessary.
Sections of the psychosocial website include: How will we get through this?, School Support, Community Support, Informed Consent, Grieving and Palliative Care, Meet the Children (with direct links to each section).
Information for Parents
DISCLAIMER - While we tried to include potentially useful resources, this website is not exhaustive. New and additional resources may be available. Please let us know if there is a resource you would like to be included.